In this episode of Heavily Metalled, Shari sits down with Keslie to share a striking parallel in their journeys with Tarlov Cyst Disease and metal hypersensitivity.
Both women underwent surgery with Dr. Rudolph Schrot M.D., Chief of Neurosurgery in Sacramento, CA—one of the few neurosurgeons in the U.S. specializing in Tarlov cysts—where metal craniofacial microplates and screws were used to close the exposed sacral bone where it was exposed and used to access the sacral nerves.
What followed within 3-4 months was a cascade of systemic symptoms that were cautiously expected, due to the known allergy beforehand, but were hopefully to be avoided due to the trace nickel content in the surgical hardware.
Keslie, a California-based hypnotherapist, trauma coach, and holistic healer, shares her path from being dismissed and gaslit by doctors to finally receiving a diagnosis. As a mother of three daughters born in quick succession, her symptoms intensified over time, eventually leading her to surgery.
Through online patient communities and the growing awareness of metal hypersensitivity, both Keslie and Shari were able to investigate further and tie their systemic symptoms to their implanted hardware.
After undergoing second sacral surgeries to remove the metal implanted in the initial surgery, both experienced meaningful resolution of systemic symptoms—a turning point that reshaped their understanding of their health.
Keslie also opens up about the added complexity of Ehlers-Danlos Syndrome, surgical challenges, and her ongoing recovery.
This episode highlights the importance of awareness, informed consent, and listening to your body—especially when answers aren’t easy to find.
In This Episode you will learn:
--Why even tiny amounts of metal in Tarlov cyst surgery can matter
more than you think.
--What happened when two patients removed their hardware
post-operatively.
--How to recognize patterns when answers don’t add up.
~Links and Resources~
~ If you have unexplained sacral pain, find out more about Tarlov Cyst Disease Foundation HERE: https://www.tarlovcystfoundation.org/
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~ Contact the Tarlov Cyst Society HERE: https://www.tarlovcystsociety.com/
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~To make a comment or petition to the FDA, click HERE: https://www.regulations.gov/#!home
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~To follow Heavily Metalled on RUMBLE click HERE: https://rumble.com/c/HeavilyMetalledPC
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~Get the Low Nickel Diet cookbook HERE: http://TheLowNickelDiet.com
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~To learn more visit HeavilyMetalled.com.
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***Many WONDERFUL, supportive special-interest communities exist for metal allergies and diet, hardware issues, medical devices, etc., online and on social media. They have many resources and often act as a collective think-tank. I owe many parts of my recovery to knowledge obtained in such groups. Search keywords to join these groups and find your tribe!***
